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Son inspires Texas mother Hannah Lowe to raise $ 2 million to study a rare, fatal genetic condition – CBS Dallas / Fort Worth


HOUSTON (CBSDFW.COM) – Texas mom Hannah Lowe on duty fundraising 2 million dollars to study a rare form of muscular dystrophy that her youngest son, a scissor boy named Austin, with big and beautiful eyes, is named L-CMD. On Tuesday, she hit a pivotal milestone in her mission, surpassing the $ 500,000 mark.

Austin Lowe is 1.5 years old and suffers from a fatal muscle wasting disease called LMNA-related congenital muscular dystrophy (L-CMD). (courtesy: L-CMD Research Foundation / Hannah Lowe)

Austin, who is “mentally sharp, cheerful and resilient,” has found ways to adapt even though his muscular impairment robs him of the ability to lift his head, eat by mouth, sit up or crawl 1 ,5 years old. Babies love music, dancing, building blocks of lights and any toys that make sound with buttons.

The L-CMD is fatal. According to statistics, children with this disease live under 18 years of age and cannot fight respiratory or heart failure.

Lowe wanted break that statistic, not just for Austin, but for all children with L-CMD.

She started L-CMD research fund to fund the work of researchers and scientists who will develop L-CMD therapies and cures.

“Given that Austin is in the final stages of the spectrum, we cannot wait for science to come to us; Lowe says we must seek out the most promising, advanced scientific technologies.

The most urgent project, that could literally save Austin from childhood illnessh, is the development of a gene therapy. The effectiveness of gene therapy decreases as the child gets older and as the disease progresses; As a result, time is running out, says Lowe.

“We know that the sooner a child with degenerative disease is treated with genes, the better the results. The implications of this science can change the world, and we are ready at a time when we prepare to make these treatments and cures a reality for many, ”she said.

The fund’s goal is to raise $ 2 million on Austin’s second birthday – “2 Previous 2! – Click to contribute

Here’s how Lowe says you can help: donate what you can, share fundraising activity in your network, share their social media posts – IG: www.instagram.com/lcmd.foundation, Twitter: https://twitter.com/FoundationLcmd or Facebook: https://www.facebook.com/LCMD.foundation.

You can also contact [email protected] To discuss large donations, check donations, fundraisers, corporate matching, or corporate sponsorships.



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